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Brands and Their Owners
Welcome to the Brand page for “IAMRARE.ORG”, which is offered here for I am rare;providing an internet website portal serving the rare disease community featuring technology that allows users to access product guides for navigating the registry platform, resources for submitting documents to institutional review boards, exchange ideas regarding rare diseases, view portal software enhancement releases, request training and gain access to resources for rare disease healthcare management, and document templates for customization with regard to rare disease name, organization name and registry name, informational brochures to publicize particular registries or use as recruitment materials, study consent forms, and protocols;.
Its status is currently believed to be active. Its class is unavailable. “IAMRARE.ORG” is believed to be currently owned by “NATIONAL ORGANIZATION FOR RARE DISORDERS, INC.”
| Owner: |
NATIONAL ORGANIZATION FOR RARE DISORDERS, INC.
Owner Details |
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| Description: |
I AM RARE;Providing an internet website portal serving the rare disease community featuring technology that allows users to access product guides for navigating the registry platform, resources for submitting documents to institutional review boards, exchange ideas regarding rare diseases, view portal software enhancement releases, request training and gain access to resources for rare disease healthcare management, and document templates for customization with regard to rare disease name, organization name and registry name, informational brochures to publicize particular registries or use as recruitment materials, study consent forms, and protocols;
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| Categories: | RARE |